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making_art

Member
Being diagnosed with Asperger's was a relief... and made me determined to help others in same situation
Jul 15, 2014 07:36
By Joan McFadden

CAITLIN Meechan reveals why understanding her symptoms lifted a weight off her shoulders and how she now wants to work with children with autism. AT school, Caitlin Meechan was branded lazy by teachers and she didn’t understand her friends’ jokes.

She knew she was different from her pals but not knowing why left her frustrated.

Eventually, Caitlin, now 20, finally learned what was wrong – she had Asperger syndrome, a form of autism.

She is one of the estimated 700,000 autistic people in the UK, that’s about one in 100.
Caitlin, of Garrowhill, Glasgow, said her diagnosis came as a relief.

She explained: “My mum and gran knew there was something different about me from when I was quite small.

“I would react very badly to any changes, especially upsetting ones.
"What I noticed most was that I never got my friends’ jokes but being diagnosed with Asperger’s explained all that and it was a relief because I then understood so much more about why I was different.”

Her family’s persistence with Caitlin’s GP paid off and she was finally referred for an assessment while at school. But she initially found it difficult to tell her friends.

She said: “I didn’t want to be seen as weird or different. Then I realised that it wouldn’t make any difference to them and I wasn’t expecting any special treatment because of it – they’re my friends and that’s not going to change just because we’ve found out why I don’t find their jokes funny.”

Caitlin is now putting her experience to good use and has been working at Thistle Childcare at Stepping Stones for Families, in Glasgow’s Easterhouse, for the past 18 months.

She said: “I love my job as I can help others, so I want to go to college and specialise in working with children with autism.

“I really feel now that I could hopefully carry on and get all the qualifications needed for a career that focuses on children with additional support needs.

“What I’m hoping for is not just using the qualifications and experience I gain in training but to put my personal experience of Asperger’s to good use.

“I really feel sorry for parents wondering what the future holds for their child but I can say to them, ‘Look at me. You’re not alone and there’s lots of support to help you help your child do their best and make the most out of life’. I think you need ordinary people like me to convince them it’s not the end of the world.”

Caitlin is being trained under the Modern Apprenticeship scheme, a programme for young people that is part-funded by national training body Skills Development Scotland.

National training head Karen Murray said: “Caitlin has shown how the apprenticeships provide flexible work-based learning for young people from all walks of life, offering an opportunity to get that first step on the career ladder. She also demonstrated the value of the range of skills that different people can bring to the workplace.”

Caitlin, determined to make her career in this area, added: “It takes me a bit longer to understand new topics but if things are explained clearly I am fine.”
 

PrincessX

Account Closed
It is not optimal to be diagnosed at 20. I wonder how many kids are undiagnosed in Canadian schools, where roughly about 10% of students are special needs, but often no one usually knows what the special about them is. I wonder what is the logic behind not letting kids have OHIP covered psycho-educational assessments and leaving parents and teachers alone in the dark.
 

PrincessX

Account Closed
I agree that money can be the answer for achieving short-term political goals. Nobody considers the long term outcomes of the current health policy and that is why I said I do not see the logic. I think we will see more of these stories: "What a relief to be diagnosed with Autism at 20". A lot of kids are deprived from access to assessment and therapies, even just for things like articiluation problems after ear surgery.
This is going to cost a lot in the long run. Parents are given estimates of a few thousand dollars for an assessment. Therapies cost them 100$ ++per hour. What percentage of the population can afford these fees? Why is everybody saying that Canada has public healthcare system. What is public about the services for children, other than emergency medical services.
 

making_art

Member
This 20 yr old lives in Scotland so the access to early intervention may be different than in Canada. A number of years ago with pressure from parents and professionals there was a shift and funding did pour into early intervention with children with autism in ON. Not sure what that looks like now or in other provinces.

I have a preschool relative who was not able to see an Occuptaional Therapist for an assessment and it is critcal. Because the wait list is so long he will be in kindergarten and will no longer qualify for the public OT. The wait list for the school system may be even longer so we are paying for it. Making public services and assessments available is one thing but having wait lists so long you cannot access them is another. Sigh.......
 

PrincessX

Account Closed
I have a preschool relative who was not able to see an Occuptaional Therapist for an assessment and it is critcal. Because the wait list is so long he will be in kindergarten and will no longer qualify for the public OT. The wait list for the school system may be even longer so we are paying for it. Making public services and assessments available is one thing but having wait lists so long you cannot access them is another. Sigh.......

The only way around for this family might be to coordinate private insurance coverage from a few different companies (it is called coordination of benefits) and receive private OT services, which are usually in the 100-130$/hr range, depending on the province and therapist. There are very long wait lists for public services and usually the children get a block of therapies, which might be something like 8-10 visits per 6 months. Not enough to make a difference for a child with Autism.
 
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