Advocacy movement for DID

[Daniel E.]

Dissociative identity disorder - Wikipedia

en.wikipedia.org

Advocacy movement​

In the context of neurodiversity, the experience of dissociative identities has been called multiplicity and has led to advocacy for the recognition of 'positive plurality' and the use of plural pronouns such as "we" and "our". Liz Fong-Jones states those with this condition might have fear in regard to "coming out" about their DID, as it could put them in a vulnerable position.

In particular, advocates have challenged the necessity of integration. Timothy Baynes argues that alters have full moral status, just as their host does. He states that as integration may entail the (involuntary) elimination of such an entity, forcing people to undergo it as a therapeutic treatment is "seriously immoral".

A DID (or Dissociative Identities) Awareness Day takes place on March 5 annually, and a multicolored awareness ribbon is used, based on the idea of a "crazy quilt".

 

[Daniel E.]

DID Awareness Day March 5​

Tiffany Phillips, MA, LMFT

Dissociative Identity Disorder (DID) is a mental illness that, despite prevalence rates similar to Bulimia and OCD, is traditionally misdiagnosed and misunderstood by both the public and mental health providers. March 5th is observed as Dissociative Identity Disorder Awareness Day in efforts to increase awareness of and education about DID.

Until the mid 1990’s, Dissociative Identity Disorder was referred to as Multiple Personality Disorder. It was renamed in order to more accurately describe the symptomology experienced. It is estimated that DID affects approximately 2% of the general population and is predominately caused by severe childhood trauma combined with a disorganized attachment style. During development, children typically complete the process of personality integration around age 9. When long-term child abuse occurs before this process has completed, combined with a disorganized attachment system that prevents the child from reliably being able to soothe and seek comfort from caregivers, the personality system is unable to fully integrate into a single sense of self.

Those with DID have two or more distinct and separate identities, each with their own pattern of relating to their environment and to others. They experience significant memory loss of time, people, and events in their lives due to these dissociated Selves. Having different parts of Self holding specific memories or events that the other parts of self are unaware of becomes the child’s main coping mechanism in order to function and survive within the abuse. This may allow a child to go to school during the day without having to recall the horrors they may experience later on after school.

Although it started as a coping mechanism designed to manage the unmanageable, those with Dissociative Identity Disorder may begin to struggle with quality-of-life interfering symptoms. In addition to the amnesia, these may include depersonalization (feeling detached from their actions, emotions, thoughts or sensations as if watching a movie of one’s life rather than experiencing it first-hand), derealization (the feeling that things around them do not feel real), flashbacks of memory (often described as awake nightmares) and eating disorders or addictions that are used as a way to manage mood issues such as depression, anxiety, and/or suicidal ideation.

As those of us working with Dissociative Identity Disorder know, DID is often misdiagnosed as Borderline Personality Disorder, Schizophrenia, or Rapid-Cycling Bi-Polar Disorder. It may take years to receive an accurate diagnosis and therefore receive proper treatment. Sometimes when clients come to a dissociation-aware therapist, they may have been misdiagnosed many times, and have spent many years in therapy not being correctly treated. This is traumatic for both survivors and their families. Additionally, there is a social stigma associated with DID that has been perpetuated by misunderstanding of the disorder. This has been exacerbated by popular culture, television and film inaccurately portraying those with DID as dangerous.

The International Society for the Study of Trauma and Dissociation (ISSTD) seeks to advance clinical, scientific, and societal understanding about the prevalence and consequences of chronic trauma and dissociation. Therefore, we welcome an opportunity like DID Awareness Day to raise awareness in the mental health world about DID and other dissociative disorders while empowering those with DID to share their stories and learn to accept themselves in a world where this disorder is misunderstood...