chooseLife
Member
I am on medicare. have been since I was 23. my "main" diagnosis is a psych one since the lawyer at the time thought i could get it easier if I only had the psych diagnosis rather than physical as well. My issues are both. my "breakdown" came after my physical injury. Anyway, I was one of those people who was diagnosed as a "bad borderline" back in the 80's when the false memory people were suing a lot of T's. I was in and out of the hospital constantly and even kept for a year once while they kept changing my dx. each month/week to get more "days" from my insurance company.
Nobody ever asked me if I had ever been abused because I guess they were afraid to "place memories into my mind" as the FMS folks said. Funny how the word "syndrome" can be added to things to make them sound like real disorders without medical backup - much like what prolife folks are saying about post-ab. syndrome....not real either. Maybe as opposed to PTSD or CPTSD - we need an "acute post R syndrome" so that what you feel after R can be valid instead of waiting months before you get the official PTSD diagnosis. but I digress...
anyway, because I was on medicare and because medicare is illegally allowed to use disparity when it comes to separating psych from medical (which is illegal for any other insurance company except the government issued one) ...those on medicare have 190 lifetime days for private hospital psych admission regardless of what age you are when your psych stuff starts. That was allllll used before I hit 40 yo. It's like being disabled for cancer and saying I can't get "specialized" cancer treatment. It's just wrong.
so, now, for the rest of my life, I can not get into a private hospital that actually treats PTSD/CPTSD. I get put on a mixed ward - with inappropriate men...and told to heal/feel better in 3 days and I can only get inpt help if I am sui. which removes any focus on any of the rest. I just got out of the hospital after being out for over 14 years and one of the men on the unit kept going into patients rooms during the night and taking down his pants. That meant I was not going to sleep of course and i had already only had like 14 hours sleep the previous 7 days. what a mess. I finally got my room changed to across from the nursing station so i could feel safer. then just the noise of the nurses kept me awake! :facepalm:
John Kerry and someone else has a bill in congress to undo medicare parity but it's stalled like so many other things. It's hard to know for the rest of my life, I can't get appropriate care. AND my co pay for T is 45% instead of 20%. T is the only treatment I am allowed and I can't afford it. Why can't NAMI get behind this and why can't something big start so that this is done. psychiatric parity for all insurance is the federal law. why NOT for medicare?
but they want me to heal and not hurt anyone else. Think about the amount of harm done in this nation by undertreated or NOT treated folks with psych disorders. Fortunately for society, all of my stuff is self directed. I will always hurt myself before I hurt anyone else.
and medicare counts on that. so does society.
I went a little off the beam...but it's frustrating. I so wish I could find a good woman's program who could do intensive treatment so that I have a chance to have a good life at some point. My "days" were used up before I ever got the correct diagnosis.
be. chooseLife.
Nobody ever asked me if I had ever been abused because I guess they were afraid to "place memories into my mind" as the FMS folks said. Funny how the word "syndrome" can be added to things to make them sound like real disorders without medical backup - much like what prolife folks are saying about post-ab. syndrome....not real either. Maybe as opposed to PTSD or CPTSD - we need an "acute post R syndrome" so that what you feel after R can be valid instead of waiting months before you get the official PTSD diagnosis. but I digress...
anyway, because I was on medicare and because medicare is illegally allowed to use disparity when it comes to separating psych from medical (which is illegal for any other insurance company except the government issued one) ...those on medicare have 190 lifetime days for private hospital psych admission regardless of what age you are when your psych stuff starts. That was allllll used before I hit 40 yo. It's like being disabled for cancer and saying I can't get "specialized" cancer treatment. It's just wrong.
so, now, for the rest of my life, I can not get into a private hospital that actually treats PTSD/CPTSD. I get put on a mixed ward - with inappropriate men...and told to heal/feel better in 3 days and I can only get inpt help if I am sui. which removes any focus on any of the rest. I just got out of the hospital after being out for over 14 years and one of the men on the unit kept going into patients rooms during the night and taking down his pants. That meant I was not going to sleep of course and i had already only had like 14 hours sleep the previous 7 days. what a mess. I finally got my room changed to across from the nursing station so i could feel safer. then just the noise of the nurses kept me awake! :facepalm:
John Kerry and someone else has a bill in congress to undo medicare parity but it's stalled like so many other things. It's hard to know for the rest of my life, I can't get appropriate care. AND my co pay for T is 45% instead of 20%. T is the only treatment I am allowed and I can't afford it. Why can't NAMI get behind this and why can't something big start so that this is done. psychiatric parity for all insurance is the federal law. why NOT for medicare?
but they want me to heal and not hurt anyone else. Think about the amount of harm done in this nation by undertreated or NOT treated folks with psych disorders. Fortunately for society, all of my stuff is self directed. I will always hurt myself before I hurt anyone else.
and medicare counts on that. so does society.
I went a little off the beam...but it's frustrating. I so wish I could find a good woman's program who could do intensive treatment so that I have a chance to have a good life at some point. My "days" were used up before I ever got the correct diagnosis.
be. chooseLife.
