More threads by David Baxter PhD

David Baxter PhD

Late Founder
My Illness Is Not My Identity
by Therese Borchard
Tuesday April 20, 2010

I was asked by Diana Keough of ShareWIK.com to write about the topic of living with bipolar without letting my mood disorder define me.

"A label is a mask life wears," writes Rachel Naomi Remen, M.D., one of the first pioneers in the mind, body, health field. "Labeling sets up an expectation of life that is often so compelling we can no longer see things as they really are. . . . In my experience, a diagnosis is an opinion and not a prediction. What would it be like if more people allowed for the presence of the unknown, and accepted the words of their medical experts in the same way? The diagnosis is cancer. What that will mean remains to be seen."

I used to think that meant that I shouldn't call myself bipolar, that I should stay away from hospital psychiatric programs, therapists, and head doctors; that I shouldn't take antidepressants, mood stabilizers, or any kind of sedative; and that I should rely on nothing but my inner strength to carry me forward through the hard days.

Having tried that, and failed (really, really failed), I have come to a new understanding of that quote. For those of us with chronic illnesses that we can't imagine away, I believe Dr. Remen simply encourages us to make decisions as individuals, not necessarily as bipolars, or diabetics, or cancer victims. We will always have to be mindful of our diagnoses, of course, in our relationships and work ventures. Because we need to surround ourselves with supportive people who will undergird our recovery, and we must maneuver our careers in ways that will aid our health.

But first and foremost we are individuals, not bipolars or sick people.

This is probably one of the hardest task for me as a person who struggles with a few kinds of mood disorders ... to know when I can temporarily forget that I have a power failure in my prefrontal cortex (part of the frontal lobes of the brain), and that my amygdala (fear center) has a propensity to bounce up and down like Tigger in Winnie the Pooh ... when to do something really risky--like have a baby or sign a contract promising to deliver two to four blogs a day for a year--and when to rein in all opportunities and play it safe.

I never really know until after the decision is made.

I suppose it's an exercise in saying the Serenity Prayer: trying to identify the things I can't change, the things I can, and asking God for a little assistance in telling them apart. In her book, The Wisdom to Know the Difference: When to Make a Change-and When to Let Go, Eileen Flanagan writes about how we can better live the Serenity Prayer ... or navigate more gracefully through the thorny territory between our diagnoses and our opportunities. Much of it, she says, comes from accepting ourselves: with our cotton mouths and extra pounds, with our hypersensitivity to noise and stimulation, with our low threshold for stress. She writes:
Accepting life's flat tires seems to be easier for people who have accepted themselves. If you know who you are, what you are capable of, and what you are called to do, you are much less likely to waste your time and energy sweating the small stuff or even the big stuff you cannot change. You are less likely to project your uncomfortable feelings onto other people, instead of facing your feelings and learning what they have to teach you. You are less likely to waste time trying to change other people and more likely to influence them with a positive example.
I'd like to think she's right ... that the more we accept ourselves with our limitations, the more freedom we feel in living as individuals, not merely as bipolars, diabetics, or cancer victims, and the better we can distinguish the things that we can't change from the things that we can.

Here's to trying anyway.
 
I don't think there should be any labels because they take away the person that is hurting so much. The dam labels is what is seen first most and the person underneath is forgotten abt
There is no way i would ever allow anyone to address my daughter or family members as an illness ever again. It is not necessary treat a person like a person as a whole with emotions and a need to be accepted no matter what.
 

David Baxter PhD

Late Founder
Violet said:
labels is what is seen first most and the person underneath is forgotten abt

I'm sorry if that's been your experience but I don't think this is generally the case. A diagnosis is just that: A way of describing the symptom picture and an aid to constructing a treatment strategy, neither of which necessarily ignores the person with the diagnosis - for one thing, invidiuals vary in their symptoms, the severity of their symptoms, their prognosis, and their response to treatment.
 
With mental illness the pt is referred to as their label not so with other illnesses but yes the label for some is used to help with their care but when a patient is called a illness and not by their name then that is putting the person last. I am sorry i do see what you are saying but with mental illness to often the person is lost and they are referred to as their illness and it is very wrong.
 

David Baxter PhD

Late Founder
With mental illness the pt is referred to as their label

Again, I can tell you that this is not the norm. I'm sorry of you've encountered mental health professionals that have given you this impression but the majority of people working with the mentally il are mental health professionals, not ill-informed bigots.

Please don't characterize an entire profession (or group of professions) this way based on the actions of a few.
 

PsyChris

Member
I don't think there should be any labels because they take away the person that is hurting so much. The dam labels is what is seen first most and the person underneath is forgotten abt
There is no way i would ever allow anyone to address my daughter or family members as an illness ever again. It is not necessary treat a person like a person as a whole with emotions and a need to be accepted no matter what.

I think for non-mental health proffessionals you are definitely right. As psychologists we like to play the medical game and attempt to classfy disease into cold clinical terms. The problem is that you can take Prozac for your Gastroesophageal Reflux Disease and it will make you symptom free. We simply don't know enough about the brain to make any medications that will "cure" anything.

Mental Health proffessionals are trained far beyond the diagnosis label. We are bound to use it for insurance purposes and it does help to get other clinicians in the same mind-set when we have to consult our peers.

I think you should consider who is using the diagnosis label and how much they might know about that disorder. For instance, anyone can go and read the DSM to see the critiera for Bipolar Disorder. The DSM does not come close to identifying the things that are actually going to concern the family, the anxiety, the depression, increased chance of suicde etc., A good clinician will be able to get their patient beyond the diagnosis and understand their illness.
 

David Baxter PhD

Late Founder
PsyChris said:
I think you should consider who is using the diagnosis label and how much they might know about that disorder. For instance, anyone can go and read the DSM to see the critiera for Bipolar Disorder.
But not everyone has the legal authority to diagnose or to "transmit a diagnosis". That is a regulated act.
 

PsyChris

Member
True, but outside a circle of proffessionals diagnosis labels are used and often have real implications for patients.
 
Thank you for your post as i do see the necessity of a label sometimes but you do see what i see how sometimes the labels are used hurtfully.
I guess a true professional will look beyond the diagnosis and help a patient come to terms with their illness.
Your explanation has help me see things more clearly i just wish people would stop and think before they use these labels because i hate it when they say she is a psychoeffective disorder when she is not she is my daughter who has an illness not the other way around. It is awful when people are treated like a diagnosis and not a human being. If i am not making myself clear i am sorry You are right thought diagnosis can bring clarity and unity of care between professionals.
 
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